It's another Special Needs Blogger Weekend Link-Up, guaranteed to give you some good reading material for the weekend because I am quite sure you otherwise have no idea how to fill up your time.
The idea
Link to a favorite post of the week—yours or someone else's.
What to do
Scroll all the way down to the bottom of this post. Where it says "Your name" put the name of the blog followed by the title of the post (or just the name of the post, if there's no room—you get 80 characters).
Like this: Love That Max: Sabrina, Quit Teasing Me I'm Donating You To Goodwill
Where it says "Your URL" put the direct link to the post.
Click "Enter." Leave a comment if you want to say more. Go check out some great posts.
Happy linking!
Happy Friday, friends! I wrote this blog post the other day, after my almost 4 year old son, Liam (born with Spina Bifida), uttered the words "I can't do it," while working on taking steps with his walker. I'm not gonna lie -- his words rattled me a bit -- but I'm hoping some of you might have some tips for us! You can read more about it in the post above (The Pink Roller Coaster), but basically we're having a problem getting him to pull his walker forward, after he takes a step or two. Because he relies on the reverse walker to support his standing self, he can't seem to pull it forward, at least not on his own. We've tried turning the walker around so that it's forward facing, but the wheels make it difficult for him to control that way. I'm almost wondering if forearm crutches would be best for him, but I know these typically come after mastering the walker. Has anyone else found that the forearm crutches actually work better for their child? We see the orthopedic surgeon and orthotist next month, so I plan on checking with them, but I figured I'd check to see if maybe any of you have some tips on how to get him to pull the walker forward. I got desperate recently and tried bribing him with M&M's, but even that didn't work! :)
ReplyDeleteHope everyone has a great weekend,
Brigid
Ok, I'm addicted now... and loving reading these incredible stories of strength, with a twist of fun! Thanks again, Ellen! Dexter's post has a photo of him in the bath, where his liver cancer (hepatoblastoma) is visible... The power of Hindsight!!
ReplyDeleteThanks again for the link up Ellen... love reading the other posts!
ReplyDeleteHonestly, my favorite blog of the week was yours Ellen! I absolutely loved your answer to "the" letter. Fabulous, fabulous, fabulous post. But, I'll go ahead and link to one of mine for the link up. :-) Thanks again for hosting!
ReplyDeleteI linked to a post about this aunty who came to our house and implied to my mother that I ruined my mother's life within earshot of me.
ReplyDeleteThanks again for this Ellen, and I must try and read more posts this week!
ReplyDeleteThanks, Ellen!
ReplyDeleteThis week is a DIY guide for people who might be interested in creating a keyguard/finger guide for a communication app.
-Dana (Uncommon Sense)
Thanks Ellen!
ReplyDeleteMy post this week roused up a flurry. Mostly because of a spin off post that was reading it from an angle that was unintended...
I do think I'm going to change the wording from "stereotype" because that's not actually what I'm trying to get to. It's more "commonality" or "syndrome". But I think this is something we should talk about within the Ds community in particular.
xo meriah (it's sooooo weird for me commenting after Dana because my brother's name is Dana!)
Always a privilege to link,..thank you!
ReplyDeleteThis week I finished up talking about exercise and the importance of taking care of ourselves as we care for our children. I wrote about how I'm making exercise happen and a few tips to get started. I also share about a book that helped me get going and I would love to giveaway a few to help other moms in the same boat as me. Thanks for the chance to share!
ReplyDeleteHoly cow, is it Friday again already?? Thanks!!
ReplyDeleteHappy Friday! It is my second time here, and I wanted to say thank you for this amazing linky. So many great posts in one place.
ReplyDeleteMy post is about living with an invisible disability, and how it turns your child into an invisible child.
Hi everyone. Nicky here from Tales of a Tigerlilly. Hope you enjoy my post this week although Lilly didn't get to go on her mini break. She's currently in bed poorly sick :(
ReplyDeleteMy community just finished building an accessible addition including a fabulous bathroom onto our house. It's been an amazing experience. Check out my thank-you letter and the incredible video of the entire process over at Team Aidan.
ReplyDeleteTrying to catch up on the blog after a month long vacation with stops in Paris, Germany, and Rome with our two little girls. If we can do it, so can you! Check it out if you want travel tips and feel free to add any good tips you have!
ReplyDeleteTruly appreciate the opportunity to share on your page, thank you! BTW, just posted (on My Munch Bug facebook page) your eloquent reply to the horrid letter to the family with a child with autism. You're right - it's about education.
ReplyDeleteI love these link-ups, they allow me to discover some amazing bloggers but because they are so amazing I've always been shy about writing myself, so this is my first submission to it. Please read and comment constructively, thanks
ReplyDeleteThanks for letting us share! Gary Dietz www.dadsofdisability.com Have a great weekend.
ReplyDeleteWow, many posts to go through. I have not blogged much lately, what between getting our oldest ready to start kindergarten and squeezing in an overdue mini-vacation. I started to blog about meet the teacher last night then realized that I actually started a blog post about going to the school last week to get his paperwork (OT and ST evaluations) to the school, so I just edited that post and finished it up. Next week, I hope to have a good blog about his first day (or week) of school as well as three blog posts about our vacation (a post for each day because each day was an adventure). That should give me enough blog posts to share for a month! :)
ReplyDeleteMy blog has been quiet lately, due to back to school week and starting a new job as a special education teacher! So...I posted a link to my "Siblings" page of my blog, which includes a few posts about Kyle's younger sister and her thoughts about her brother with special needs!
ReplyDeleteThanks for keeping us going, Ellen!
ReplyDeleteThis never seems to work right from my phone! I'll still try though. I love it here - reading all these great posts...connecting with all these amazing bloggers. Thank you!
ReplyDeleteSo my post this week is called "Sometimes I Can't Sleep" and I'm betting each of you can relate.
http://www.whac-a-mole-life.com/2013/08/sometimes-i-cant-sleep_2481.html
I dreamed there were no labels and no stereotypes that defined them....
ReplyDeleteWith my step-daughter in jail our family is having a challenging lot of fun figuring out what to learn. We're also having plenty of brilliant conversations regarding why we're all choosing to learn something different, and why that's exactly as it should be!!
ReplyDeleteThanks for hosting this fabulous story and insight sharing party! Even if it is BYOC (bring your own coffee!!) tee hee!
Happy weekend!!
Stumbled upon this blog by chance and it is just so encouraging and life-giving seeing the links to all the other blogs specifically aimed at children with special needs - what an amazing work you are doing - be greatly encouraged... i don't have a child with special needs [or a child actually] but i am currently running a blog series [which i shared in the links] aimed at Raising children to be world changers with stories shared by some of my friends who do have children and are doing some inspirational life lessons with them to hopefully help them to grow up thinking big... i was wondering if anyone in your group would like to share a story specifically related to children with special needs [i don't know if there would be the need to differentiate but i imagine that as they respond to different things or get excited by different things that you might have some kick ass lessons up your collective sleeves] because it would be great to have that as part of the series... if so please email me at brettfish@hotmail.com and let me know what you're thinking and much encouragement to all of you - seems like a great community vibe going on here!
ReplyDeletelove brett fish
Delighted to have discovered this insightful blog and grateful for the weekly sharing opportunities! It's wonderful to have the opportunity to read so many great disability blogs!
ReplyDeleteEllen,
ReplyDeleteI really love your blog and ht elink-up posts. However, please be aware that Mr. Linky is inaccessible to blind users. The submit button won't work. I will be writing them to request they solve this issue. In the meantime, is there any other way I could submit a link if I wanted to?
Astrid, thank you for bringing my attention to that, I will reach out to Mr. Linky (whoever he/she is!) too. Meanwhile, you are free to email me links to any post you want to share and I am glad to post for you.
DeleteI love that you do these linky parties... thank you!
ReplyDeleteThanks Ellen. I have contatced Mr. Linky bu tnot gotten a response.
ReplyDelete