This is the latest post in the This Is How I Do It series, which features bloggers who have kids with special needs and their best tips for juggling parenthood, special needs and life in general.
Blogger: Meriah Nichols of With A Little Moxie
Her kids: Moxie, 3, who has Down syndrome; Micah, 5; and MacQuinn, 7 months
My biggest secrets to sanity are…
Yoga, running, painting and lithium.
I keep track of my child’s therapy and medical appointments
by…
I use the calendar that comes on my iPhone—that way I just
tap at the time/date confirmation email and it will add it to the calendar. I
also have everything sent to me via email (I’m deaf).
One way I relax (actually really, really relax) is…
I think the only way I relax is with yoga. I think the
combination of meditation and burn-my-mind-out exercise and focus is the only
thing that actually gets my brain to STOP and let me just BE. And it’s only
when that happens can I actually relax on a deep, inner level.
When I get bummed out about something related to my child,
one thing that gives me a lift is…
I think my grief over Moxie having Down syndrome was very
intense and lasted for well over a year. But when it was over, it was OVER, you
know what I mean? I truly don’t get bummed out about anything to do with her
anymore (other than the usual, gosh, I wish she’d learn how to do the dishes
already!).
But what did help me when I was bummed was the “ Children” poem
by Khalil Gibran in The Prophet:
Your children are not your children.
They are the sons and daughters of Life’s longing for itself.
They come through you but not from you,
And though they are with you yet they belong not to you.
They are the sons and daughters of Life’s longing for itself.
They come through you but not from you,
And though they are with you yet they belong not to you.
I needed to know this, on a gut level. That my experience
growing up deaf, with disability, would not be hers. That she is on her own
path, has a rich and interesting life ahead of her that is not mine.
If it weren’t for [fill in the blank], I am not sure I would
be able to get through the day
My iPhone.
The way my husband and I split up responsibilities for
caring for our child is…
We just kind of dive in and do what needs doing. I think the
piece we struggle with is caring for ourselves and our relationship—we tend
to put the kids first and ourselves last.
The way I deal if strangers stare at my kid or say things
is…
People do stare at Moxie and they stare at her a LOT.
I think it’s probably because she’s so darn cute and tiny. She is the size of a
typically developing 18 month old and yet she’s 3—so people’s eyes tend to
pop when they see her climbing up to the HIGHEST slide, yelping with joy as it
whips her down and rapidly spits her out onto the wood chips of the playground.
I just shrug for the most part. A lot of the time I can’t
hear people when they say something to me, so I do the nod-smile thing (you
know, like you do in another country and a bunch of people are saying something
to you in another language —you don’t have a clue what they are saying but
they seem to have a friendly tone, so you just nod…and smile).
One great therapy technique I recently learned for my child
from her therapist is…
Running or walking on sand. It helps strengthen her ankles,
legs and walking.
One site I’ve found lots of good ideas on is...
Lifehacker. I love, love, love
it!!! It has something for everyone and is chock full of good information.
My favorite recent post is...
Child Safety: 5 Things That Will Help Keep Your Child Safe. I wrote this after Moxie figured out how to unlock and
open the back door, slipped down the flight of stairs, under the foot or so at
the base of the main gate and was found by strangers trying to cross the large
street outside.
I rock because…
I roll!
Wonderful to see you here Meriah! I am needing some of the yoga and exercise you swear by. Instead, I find myself going to bulk barn for choc-covered almonds and rosebuds :(
ReplyDeleteThe Iphone! So true. We used it in Ophthalmology because not one of her spinning, rattling, dancing toys would work, but the iphone got him to hold still for a a few minutes.
ReplyDeleteWonderful to 'meet' Meriah :) I rock because I roll! LOL love that!
ReplyDelete