My child has much potential
Not in your med books
Mmmmm mmmmm mmmmm mmmmm mmmmm
Lips together, make that sound
Try, sweetie pie. Try.
IEP's coming
Will he get more therapies?
Curse you, budget cuts
Feeling so stressed out
By endless list of to-dos
Hi, Ben & Jerry
Please do not ask me
When he's "going to" do stuff
Think: his own timeline
I'm telling you, they're amazingly zen to write.
Photo of Japanese cherry blossom by esteemed helga
WONDERFUL! Love these. Here's mine:
ReplyDeleteAutism is a word
My son? A whole universe
Look beyond limits
Yes! Cathartic!
My Tessie Toodles
ReplyDeleteA mystery to many
An angel to me
I. LOVE. THIS!
ReplyDeleteI am going to give this a whirl :)
What is that bald spot?!
ReplyDeleteUse Seltzen you say?
...Time for 2nd opinion!
lol... awesome. I think this is how I'm going to update my fb status for a while. ;)
oops, I messed up the pattern... haiku fail.. :-S lol, still was fun. :)
ReplyDeleteNystagmus, seizures,
ReplyDeleteOptic nerve hyperplasia,
And adorable!
I just want to peek
ReplyDeleteFive, ten, fifteen years from now
What will they be like?
(No- my kids don't have special needs. However my first was slow to talk & needed EI and speech therapy until he was 7. I've often wished I could go back in time and tell my former self to stop panicking & predicting the future. Things change.)
-Heidi
I don't have children.
ReplyDeleteWhy do I keep reading blogs?
I have learned a lot.
Haley's would be:
ReplyDeleteGrandpa Grandma House
Is it so much to ask for?
I want to go now!
And this is mine:
I know you love them.
I want to make it better.
But, we can't go now.
Sharing your blanket
ReplyDeleteI feel the comfort of weight
Best advice I got
stupid change in time
ReplyDeletecrazy physiotherapy
need a martini
Huggie, Kissie, Love
ReplyDeleteMy precious non birth baby
Days smiles, me and you.
Misjudged by others
ReplyDeletebut they are really great kids
please let them shine big
LOVE these. I think we need a Haiku Festival or something.
ReplyDeletehmmm... i will try this
ReplyDeletelove your heart, baby
although it isn't quite whole
teach us how you live
my boy is has congenital heart disease and will be recovering from his very rough beginning to his life for a very very long time... including all his feeding. why not try another...
g-tube oh g-tube
how long will you be around
can't wait to say bye
Heavy in my arms
ReplyDeleteBreath smells like pediasure
Tight smile, wrinked nose
So much fun...must try another.
ReplyDeleteLong day of driving
Stop to yell at kids and drink
Starbucks of course - mmm
my kids are 'normal'
ReplyDeleteyours a little diff-er-ent
they are all just kids :)
had to force the 7 syllables there!
my lovely girls are neurologically and physically typical, although my neice has some delays ('late' with everything so far). reading blogs like yours increases my intolerance of intolerance in every arena - whether disability, race, gender etc., and my awareness of my own unconscious biases, enabling me to change my thinking and behaviour. Thank you for shining a light on your world, which casts a greater illumination on the whole world. xx
Books written by experts
ReplyDeleteGreat for some, but not this kid
He will write his own
Henry
ReplyDeleteMy beautiful gift
How did I get so lucky
Gave my life purpose
My 2 year old would say...
ReplyDeleteI want my iPad
I need my Nikki Minaj
I'm lost without her
And mine would be...
Soon she'll start preschool
What will it be like for her?
I hope she makes friends
People say weird things
Usually I'm not bothered
But sometimes it hurts
To "meg w.": I read your comment, and would just like to let you know, I was also born with a congenital heart defect, and had 4 open heart surgeries as a baby. Sure, I've had quite a number of medical issues my entire life, and will have to take daily medication for the rest of my life. But right now I'm 18, working my first job, and will be starting college in the fall. So don't get discouraged about where your son is now, because I'm sure everything will be just fine, and one day all this will just be a bad memory. :)
ReplyDeleteDreaming and writing.
ReplyDeleteAverage reasoning stumps me.
I am not stupid.
My friends can do it.
But I need more time to learn.
Cruel posts, begone!
Here is my version
ReplyDeleteAmelia is "normal".
She isnt "disabled".
I dont want to read books written by "experts". My girl has a rare type of CP.
Look beyond Amelia's disability.
Spastic monoplegia is mild.
No assumptions please.