As parents of kids with disabilities, we want our kids to enjoy the same activities that other kids do—but in reality, it doesn't always happen. My son has been turned away from programs and recreational activities, as have the children of many distressed parents I hear from. So I asked the CEO of Kids Included Together (KIT) Torrie Dunlap, to share a practical list with how-tos. This nonprofit teaches inclusive models to YMCAs, Boys & Girls Clubs, city recreation programs and preschools, among others. Serving more than 20,000 people a year, KIT has worked in 45 states and 10 countries. Clearly, they know what they are doing.
If you are a children's program or event coordinator, camp director, coach or teacher, please, take a few minutes to read this—especially if you have hesitated to accommodate a child with disabilities.
One recent afternoon I was scrolling through Instagram, hoping to find new photos of my niece and nephew. What I did see was a
captivating 15-second video of a boy who looked to be about ten years old beatboxing like a boss. It was so good that I let it repeat several times. The
third time I watched it, I realized this talented guy has Down syndrome. I
looked at the comments and saw that he had learned to beatbox
that day at summer theater camp. Fifteen years ago, KIT began providing
inclusion training for this particular theater company, and they remain one of
our local star programs. I grabbed my iPhone and ran around the KIT offices
holding up the video and telling everyone, “What you do makes a difference!”
Glee star Lauren Potter with Torrie Dunlap, the CEO of KIT |
Over the years, I have seen countless organizations and people grapple with the idea of including
children with disabilities in their programs. There are attitudinal barriers
like fear and lack of experience with people with disabilities. There are also
institutional barriers like lack of staff training and lack of
support from program leadership, and worries including cost, liability, safety and the concern that inclusion will diminish the
quality of the experience for kids without disabilities.
It really isn’t as hard as you think.
Sure, some kids
have significant disabilities and major challenges in life, but in the context
of programs, and with the right supports, most children do just fine. Kids
are much more alike than they are different. They all come to a program or class to have fun, to make friends and to learn. Commit to inclusion not because it is the law, but because it makes your program better—for every kid. It’s true. The research shows that including kids with disabilities in your programs is good for them, but it also benefits the kids without disabilities.
Here are eight things to keep in mind for creating an environment where everyone is welcome:
Get into the inclusion mindset
Inclusion is first and foremost a
philosophy that says that everyone belongs. Inclusion means that every child
has value and has something to contribute. When you
adopt an inclusive mindset, barriers are easier to overcome, solutions are more
readily available, and the whole feeling of the program evolves to one of
community.
Create a partnership with the family
In the child’s parent
or caregiver you have access to the absolute expert on the child.
They know the child’s likes and dislikes, his special talents, what triggers
challenging behavior and what can be done to calm him when necessary. In your job
as a camp director, after-school program leader, ballet teacher or soccer coach
you have the knowledge of your subject and you know how to teach groups of kids. When you
put parents' knowledge together with yours, BAM! You have some serious
super-powers. Although not every parent is going to be willing or able to
give a lot of support, by being open and inviting a team approach, you
create the possibility. Remember, the parent wants this to work too. They are
often very eager and willing to help, because they know your program would be
an awesome experience for their child.
Understand that small changes can have a big impact
Many accommodations are
easy and inexpensive. One example is creating visual supports that work well for
children with autism and other disabilities, like a program schedule
that uses pictures instead of (or in addition to) words. Before each activity
show the schedule, and point to the picture of what is happening next. You can
also make a small choice board with photos or images of different options for
snack or free play activities, which can work well for children without verbal
language. Another small change that makes a big difference is working on the
transitions in your program. Moving from one activity to another, or from one
location to another (like outside play to inside for snack) can be very
stressful for children. When children feel stress or anxiety they often show
you through their behavior. If you can put some structure to the unstructured
time, most of the children in a program will feel more relaxed. The big secret about inclusion is that what works for kids
with disabilities works for kids without disabilities, and by practicing
inclusion you make your whole program quality better.
Don't worry—it's OK for everyone to participate differently
At KIT we’ve worked
with a wide variety of types of programs including museums, zoos, preschools and even a farm. Across the board we tell them, “It is OK if
everyone participates differently.” In 2007 we were working with a children’s
theater company in Maryland that came to us with the challenge of how to
include a child who used a wheelchair in their dance classes. What could they
do? We asked them to look through the lens of the child’s interest in the dance
class. Why did she want to be there? In this case it was a child who loved
music and was fascinated by movement, even if learning to pirouette wasn’t in
the cards for her. They discovered that she could be the class “DJ” and play
the music, could count off the four beats to start the dance and could use her
arms to learn some of the moves when she wanted. This young girl got something
valuable out of this experience, and it didn’t need to be what the other
children got out of it. She was engaging with her love of dance, and everyone
was happy.
Play to strengths
When a parent shares a child’s strengths,
talents and interests, it’s the most helpful information you can have in your
pocket. I had a student in my theater programs whose biggest love in life was
SpongeBob. When I could find ways to include SpongeBob in the scenes we were
doing, he was happy and engaged. SpongeBob making an appearance in
Shakespeare’s A Midsummer Night's Dream? Sure, why not! Kids often have a
special interest or talent that you can incorporate into the program. In a Boys
& Girls Club that we worked with, they were struggling to serve a 9-year-old
with autism. He was having trouble engaging with the other kids and there was
nothing in the program that would hold his interest for very long. When we
found out that his special interest was weather patterns (actually, his
talking about weather all day was annoying the other kids), we found a way to
use it. The club staff created a daily news program and Tommy became the
weatherman. The news program became the most popular activity at the club, and
now Tommy was seen in a new way by the kids; for his ability, and not his
disability.
Help facilitate relationships
As humans we are social
creatures. We need and want to connect. This is the same for children with
disabilities, even those who seem like they don’t. Tommy was having trouble
engaging with the other kids, and it wasn’t because he didn’t want to, it was
because he didn’t know how. The news program allowed him to work
collaboratively, and not competitively, with other kids which was a great
start. Then the program staff could teach him the skills to engage with the
other kids. He learned how to approach them, and how to invite them to play a
game. The other kids learned how to say, “Please stop. I don’t like that” when he
tapped on their shoulders too strongly to get their attention. They learned how
to help him take turns in games like Connect Four. In an after school program
in Northern California, a 12 year-old with autism had been sitting at a table
every afternoon coloring by himself. The program thought this is what he wanted
to do, and they left him alone. After learning about inclusion they began to
help him learn to connect with others in the program. When his mom came to pick him
up one day and saw him playing four square with three
other children on the playground, she told the program leader “This is the first time I have seen him play
with other kids."
Know that everyone benefits from inclusion
In the beginning, you
think it’s about the kids with disabilities. You think you are helping them or
helping their families. But once you start practicing inclusion, you realize
that everyone is getting something out of the experience. It’s not really about
the kids with disabilities, or their families, it’s about the community as a
whole. Your program becomes a place where everyone can thrive. Where everyone
learns more about themselves, where they explore new talents and interests,
where people who are different learn to get along, and where they learn that
they have more in common with others than they thought they did. Parents report
that the friendships their children are making with children with disabilities affect their other relationships in a positive way. They become more
empathic, patient and accepting of differences. The benefits of inclusion
extend out into the community. Our long-time partner the San Diego Zoo recently
received a special commendation from the City Council for their efforts to
ensure that children with disabilities are included in the education programs.
Celebrate successes!
I am not saying that meeting the needs
of all kinds of kids is always easy. I know it’s not. I know how hard your job
is to begin with, even without a child with autism, Down syndrome, cerebral
palsy or other disability in your class. But not only is it worth it, it is
necessary. Our world needs to be a place where everyone belongs. Kids need to
know that everyone has value, and you show them that by treating everyone in
your program equally, and with great compassion and love. Sometimes it will be
hard, but you will have many successes. Share them with
the child’s family and with your program team (“Guess what—Juan Carlos used
words to ask for snack today!”). I had a mother come to me in tears once when
she received the summer camp group photo we had taken. She told me, “It's the first time I have ever seen my son smile in a photo.” This is the
opportunity we have. This is what we can create. So try not to worry, try not
to be afraid. You probably got into this field because you love nurturing children
and helping them grow. You can do this. And you have no idea what change you
can create for the world by being open to the possibility of inclusion.
Kids Included Together stands ready to help! Click here for a free trial to our Online Learning Center with a ton of free tip sheets,
instructional videos and a couple of free learning modules.
Top and bottom photos courtesy of KIT/photo of Potter and Dunlap: David Manning
woohooo! Yes, Yes, Yes! I LOVE, LOVE this post- all of it. Thank you for writing it. I am going to link this up.
ReplyDeleteWow, that sounds like a wonderful program and I love hearing about those success stories. We've had both good and bad experiences with day camps. Our local (I'm in Canada) Boys and Girls Club is fantastic. They have an inclusion coordinator and my son LOVES going there, which we are allowed to do for two weeks. We did not have such a great experience with our local Y day camp. My son and another kid with special needs spent most of the time in a separate room with their helpers, watching TV and doing crafts. They went for a walk every day, also separately. They did go swimming with the rest of the campers. It broke my heart to pick him up in the segregated room every day, although my son did seem to have a good time.
ReplyDeleteI think as parents our experience has been that we don't want to complain, as we are just so grateful to be able to send our son to day camp for the allowed two weeks. We also have a day camp for kids with intellectual disabilities that parents will line up hours for, often with their crying, exhausted kids in tow, because there are no other affordable options. Honestly, the general public has NO idea what we go through, nor do they really care. (With the exception of the lovely lady in the article!)
Band camp is coming up! I love band and the people in it, but how will I fare in marching?
ReplyDeleteThanks for all you do!
ReplyDeleteFantastic post, thank you!
ReplyDeleteWonderful post! Thank-you!
ReplyDeleteI think every supprt worker, teacher and social group organiser should read this. I will be sharing Ellen. Hayley x
ReplyDeleteCheck out www.CampFatimaNJ.org. They got it right
ReplyDeletebut don’t develop it to the point your reader is left unsatisfied if you don’t deal with the other character’s story. You don’t have time for that. child adoption process
ReplyDelete